Attention Deficit Hyperactivity Disorder (ADHD) What is it Really?: A Nervous System on Fire
Understanding ADHD as it actually shows up in real life, not just in textbooks. Explained simply.
Disclaimer: All stories in this post are examples and composites, not case notes. They are written to illustrate experiences, not to identify individual humans, services, or staff. The purpose is to share understanding and reduce stigma, never to place blame.

What We Used to Believe, and Who That Hurt
Fifteen years ago, the word ADHD meant one thing to me: a chaotic kid who couldn’t sit still.
Someone loud, impulsive, obsessive, the kind of person people joked about behind their hands. That was the entire picture I held.
I didn’t know ADHD was more than hyper kids and unfinished homework.
I didn’t know adults could have it. Or women. Or quiet people. Or care workers.
I didn’t know ADHD could hide behind politeness and perfectionism.
I definitely didn’t know someone like me could have it too.
Back then, the myths were loud and confident. People thought ADHD meant no boundaries, no impulse control, and absolutely no hope. They told us you “couldn’t say no” to someone with ADHD. That routines had to be rigid or everything would fall apart. That teaching flexibility was cruel.
It was all nonsense.
I’ve said no to ADHD.
I’ve supported people with ADHD using boundaries that were kind, consistent, and human.
I’ve watched flexibility grow in people who were once terrified of change.
Because here’s the truth: you can teach someone with ADHD how to cope with change, but you can’t do it during a meltdown. You teach it in the quiet moments, when the nervous system isn’t already on fire. You build the skill before the cooker top gets touched, not in the heat of the crisis.
Routines help, absolutely. But routines without flexibility become traps.
The first time life changes, and it will, the whole system collapses.
I’ve seen full-scale breakdowns happen because a small thing shifted.
And I’ve been there myself, on both sides of the support line.
So What Is ADHD, Really?
If you’re reading this and quietly wondering for yourself, your child, your partner, or that one friend who loses their keys six times a day but can recite shark facts like a BBC presenter, here’s what we actually mean when we talk about ADHD.
ADHD stands for Attention Deficit Hyperactivity Disorder, but the name is misleading. It’s not a lack of attention. It’s attention behaving like it’s on fire. Too much, too little, all at once, on the wrong things, at the worst possible time.
Clinically, the NHS (and the Very Serious Diagnostic Manuals) break ADHD into three types:
Inattentive type – distracted, forgetful, mentally elsewhere.
Hyperactive–Impulsive type – fidgety, restless, loud, blurting.
Combined type – the cocktail version, and the most common.
But real life doesn’t follow checklists. ADHD can also look like:
• Crying at the wrong time
• Forgetting the one thing you went into the shop for
• Being absurdly early or catastrophically late, never in between
• Reacting to certain fabrics like they’re personal enemies
• Hyper-focusing for hours on spreadsheets, sharks, trains, or vintage hoovers
• Going completely blank when faced with a “simple” task
• Feeling paralyzed by “just do it” advice and then blaming yourself for struggling.
It’s not a behavior problem, it’s a wiring difference.
Just because you can’t always see it doesn’t mean it isn’t there. ADHD shows up differently in different people, especially girls and women, who often get missed because they internalize instead of acting out.
And the truth most of us needed years ago?
ADHD doesn’t mean lazy, chaotic, or broken.
It means your brain runs on different rules
and you’ve probably been punished for them your whole life.
What does ADHD Really Look Like?
Not the textbook version, not the stereotypes.
Just real people I’ve known, supported, worked with, and been.
Stimming, flapping, excitement that starts at 8am and doesn’t slow down until bedtime.
Overthinking, obsessing, fixating on anything they love: trains, aeroplanes, sharks, birthday cakes, Minecraft.
Constant fidgeting, tapping, chewing, bouncing, the full human percussion set.
Blurting things out mid-conversation, or shouting “banana” in Tesco because their brain decided it was relevant.
Forgetting homework, shoes, birthdays, appointments, what day it is, and where the coat they just put down has vanished to.
Starting six projects and finishing none, unless it’s a special interest, in which case they become a walking encyclopedia.
Meltdowns when routines change or plans fall apart.
Not because they’re being “difficult,” but because their brain was already at capacity and the change tipped it over.Communication breakdowns that spiral into anger or tears.
Emotional honesty so raw and pure that it makes strangers cry in supermarkets.
Sometimes it looks like a chaotic child.
Sometimes it looks like a quiet one drifting through the day.
Sometimes it looks like a high-achieving adult quietly falling apart behind perfect grades or a professional smile.
ADHD isn’t one thing. Every person shows it differently.
But I can tell you this: the people I’ve supported with ADHD are often the most creative, loving, fiercely curious humans you’ll ever meet.
They don’t need punishment.
They need a world that understands how their brain works instead of blaming them for being born with a different instruction manual.
A Brief History of “WTF Is ADHD?”
(For People Who Weren’t Given the Manual)
Let’s make this simple. ADHD didn’t suddenly appear in the 90s with fidget spinners and chaotic children. Humans have always had different brain wiring. We just kept giving it terrible names.
1902 – The George Still Era
A British doctor, George Still, noticed some kids were impulsive, emotional, struggled with self-control… but were also clever.
Instead of thinking “maybe their brains just work differently,” he called it a moral defect.
Basically: “You’re not struggling, you’re naughty.”
Good start, George. Thanks for nothing.
1930s–1950s – The Surprise Discovery
Doctors gave some kids Benzedrine.
Yes, the stimulant.
Yes, actual amphetamine.
And somehow… it calmed them down.
Nobody knew why. Nobody questioned it. They just kept doing it.
(A beautiful combination of science, chaos, and capitalism.)
1960s – The Most Offensive Label Yet
ADHD was renamed Minimal Brain Dysfunction.
Which sounds like someone tried to insult your brain using a thesaurus.
Compassion was not the vibe.
1980 – ADD Arrives
The DSM-III (a big diagnostic manual) introduced ADD, Attention Deficit Disorder.
Now you could be diagnosed with being distracted, with or without the hyper bits.
Still focused mainly on kids.
1994 – The Labels Shuffle Again
The DSM-IV renamed everything back to ADHD and split it into three types:
• Inattentive – distractible, forgetful
• Hyperactive-Impulsive – restless, loud, acts before thinking
• Combined – both (the most common).
Adults? Somehow still not considered.
As if every adult with ADHD was too busy losing their keys to attend their own assessment.
2000s – The “Oh… it doesn’t go away” Realization
Someone finally admitted ADHD continues into adulthood.
Awareness spread slowly, but it stayed stuck to stereotypes:
noisy boys, not girls, not women, not your overwhelmed coworker eating cereal for dinner at 11pm.
2010s – Now – The Real Picture Emerges
We finally start recognizing ADHD as a whole-life, whole-body experience. It can look like:
• emotional chaos
• time blindness
• burnout
• sensory overload
• paralysis when overwhelmed
• forgetting why you walked into a room
• feeling “bad at life” for no reason
Social media helped. People saw themselves in each other’s stories. Diagnosis rates rose, especially for women and adults who were missed as kids.
So… when did ADHD become a thing?
It never became a thing.
It was always here.
We just kept giving it new names, punishing the people who had it, or pretending it was something they’d “grow out of.”
Spoiler: they didn’t.
Where the System Fails Us
Most adults over 35 who have ADHD were never diagnosed.
Especially if they were girls.
Especially if they were quiet.
Especially if they grew up working-class and were expected to “just get on with it.”
Back then, ADHD was only linked to noise and disruption.
If you were the daydreamer staring out the window thinking about flamingos, outer space, or how bricks are made, nobody thought “ADHD.”
They thought: good girl. Shy. Polite. Forgetful.
But really, you were overwhelmed.
You were masking, hiding your struggle so well that even you didn’t see it.
You were drowning in brain noise while everyone around you praised the silence.
Even now, ADHD still gets missed.
Workplaces reward deadlines and routines that don’t leave room for different brains.
Mental health services are overloaded, and assessments still look like they’re designed for children.
Schools miss it too, praising quiet compliance and punishing meltdowns without understanding the pressure beneath the surface.
And families? Sometimes they just get exhausted.
Not because they don’t care, but because living beside constant emotional intensity takes energy that eventually runs out.
You’re not “difficult.”
You’re in distress.
And you deserve understanding, not exhaustion.
What Happens When ADHD Gets Missed
When ADHD is missed, people don’t just fall through the cracks.
They build entire lives in them.
They grow up believing they’re lazy. Stupid. Broken.
They get mocked at work for counting on their fingers or making twelve lists and still forgetting the milk.
They don’t see “ADHD” in the mirror.
They see failure. Shame. Burnout. Confusion. Guilt.
A lifetime of “what’s wrong with me?” with no real answer.
And then the trauma creeps in.
Because masking for years? That’s trauma.
Being punished for distress? Trauma.
Being laughed at for your differences, blamed for your overwhelm, told to “just try harder”? Trauma.
It’s not always one big moment.
Sometimes it’s death by a thousand unmet needs.
Tiny cuts, every day, from a world that never learned your language.
Burnout, Masking, and Meltdown
ADHD doesn’t creep up. It crashes in. I’ve seen people go from calm to overwhelmed in seconds.
You hold everything in all day.
You try to be good, follow the plan, keep it together.
And then someone says “The plan’s changed,” and your brain, the one you’ve been wrestling since breakfast, just says nope.
Meltdowns can hit out of nowhere when routines collapse. Imagine your car breaks down, the day’s structure disappears, and suddenly panic floods the whole body. Kicking, shouting, tears, shutdown, until the person simply can’t anymore.
That’s not misbehavior.
That’s overload.
And the way through isn’t punishment.
It’s teaching gently, outside of crisis.
Real flexibility is built in calm moments, not explosive ones.
If someone struggles with transitions, you link tricky tasks to something they love — tidying followed by art time, or changing rooms followed by a break with a favorite show.
The message becomes: you’re safe, there are other ways through.
Over time, tiny steps build capacity, and coping becomes possible.
Support That Made Things Worse
Let me tell you about the chicken.
There was a situation where a support worker tried to make a young person eat roast chicken because “she likes chicken nuggets.”
It ended exactly how you’re imagining, full food fight, chicken across the room, pure chaos.
Because “chicken” doesn’t mean one thing.
It doesn’t mean one texture.
It doesn’t mean one sensory experience.
She liked nuggets.
She did not like roast chicken.
She definitely didn’t like slimy skin, stringy bits, unpredictable texture, or the smell.
The worker pushed.
The girl pushed back.
And in the end, the roast chicken took flight and landed directly on the worker.
I looked at her and said, “If you made me sit there and eat sprouts, you’d be wearing them too.”
The Emotional Cost
Being undiagnosed, misdiagnosed, or dismissed for years takes a toll.
You don’t just feel misunderstood you start to feel broken.
People don’t give ADHD brains time.
They interrupt.
They assume.
They punish.
They move on.
But what you actually need is a moment.
A breath.
A bit of compassion.
Someone willing to slow down, meet your brain where it is, and work with it instead of trying to force it into a shape it was never built for.
One Moment I’ll Never Forget
Once in a supermarket, a young person I was supporting started asking the cashier curious questions about her disability. Every single question, gentle, blunt, honest — and the cashier answered with the same calm kindness.
When we were finished, the girl looked her straight in the eyes and said,
“You are so beautiful. Goodbye.”
The cashier teared up. She said it made her whole day.
That’s ADHD too, the beauty, the brutal honesty, the kindness that cuts straight through the noise and lands exactly where it’s needed.
What Changes After a Diagnosis?
For some people, it’s relief.
For others, it’s grief.
You start replaying your whole life in your head, the moments you were punished for something you couldn’t control, the shame spirals, the lost jobs, the friendships that cracked because people thought you were flaky. The days you couldn’t get out of bed and assumed it meant you were lazy.
When someone finally says “ADHD,” it’s not just a diagnosis.
It’s a mirror.
One that shows you were never broken, you were simply living in a world that had no clue how your brain worked.
What do people need most after diagnosis?
A hug.
A breather.
Support that doesn’t talk down to them.
Not another worksheet, not another planner app that’s going to gather dust.
Just someone who will say, “You’re not lazy. You were never lazy. You were doing the best you could with what you had.”
Especially for those of us diagnosed later, we’ve been masking for so long that we forget there was ever anything underneath it.
What People Still Get Wrong About ADHD
Most misunderstandings aren’t malice.
They come from old training, old stereotypes, and systems that never learned how ADHD actually works.
A lot of people still mix up “won’t” with “can’t.”
They see behavior without seeing the overwhelm underneath.
They think structure must be rigid, when actually flexibility can be the thing that keeps someone regulated.
Others avoid boundaries completely, thinking it will prevent meltdowns, when in reality gentle structure is often what feels safest.
And that chicken moment? That wasn’t unusual.
Different textures, smells, routines, or expectations can feel totally different on different days, but we still hear things like:
“She ate that once, so she should eat it again.”
“He managed last week, so he’ll be fine today.”
“She had a good day yesterday, so we can push her now.”
It isn’t cruelty.
It’s assumptions.
It’s the belief that past behavior predicts future capacity, when ADHD doesn’t work like that.
Real understanding is recognizing that a person’s ability changes day to day, hour to hour, depending on their nervous system, environment, stress, routine, and what they’ve already carried that day.
Supporting someone with ADHD isn’t about being perfect.
It’s about pausing long enough to wonder why something is hard, instead of assuming it shouldn’t be.
If I rewrote the ADHD training manual…
If I ever had to write an ADHD training manual from scratch, the very first page would be simple.
No jargon. No waffle. Just the thing every overwhelmed parent, support worker, teacher, and human needs to read before anything else.
“This person is not difficult.
Their brain is doing exactly what it’s wired to do.
Your job is to understand that safely, not erase it.”
And honestly, that’s where most of us have gone wrong.
It’s not that tools are bad, charts, visuals, planners, they can help. They can be brilliant. But only when they’re built around the actual person, not slapped on as a default reaction.
One size never fits all.
Especially not with ADHD.
What doesn’t work is punishment disguised as support.
What doesn’t work is assuming someone “should cope” because they coped yesterday.
What doesn’t work is throwing routines, rules, and consequences at someone whose nervous system is already on fire.
What does work is learning the human in front of you.
What overwhelms them, what calms them, what today looks like for their brain.
Because ADHD isn’t a part-time personality trait, it’s a full-body, full-life, full-time experience.
And people don’t need perfection from us.
They need someone willing to say, “I see you,” even when everything feels chaotic.
Especially then.
What Good Support Actually Looks Like
Good support isn’t always big or dramatic.
Sometimes it’s a five-second pause instead of jumping in.
Sometimes it’s asking, “What do you need right now?” instead of, “Why are you acting like that?”
It’s preparing someone for change ahead of time.
It’s letting them stim without shame.
It’s explaining why we’re saying no, and holding that boundary with kindness instead of fear.
And it’s noticing the beautiful bits too, not just the meltdown moments.
The way they light up when talking about planes.
The way they say the thing everyone else is too scared to.
The way they love things, and people, with their whole heart.
Most People Are Just Trying Their Best (and Deserve a Medal)
None of this is about blame.
Most of the adults in the room, the parents, the teachers, the support workers, were handed a loose instruction manual written in crayon and told “good luck.” And they did their best. Even when the advice was wrong. Even when the system was stretched thin. Even when the child was currently throwing spaghetti at the dog.
And if you’re a parent reading this, especially one living the full, unfiltered, no-sleep ADHD experience, I salute you.
Maybe your kid hits out. Maybe the school calls feel like a second job. Maybe you’ve Googled “can you be tired in your bones” at 3am.
You’re still here. Still trying. Still loving with everything you’ve got (and probably keeping half the snack aisle in business).
I know you’ll say, “I wouldn’t have it any other way,” but let’s be honest, you deserve to be seen for what you carry.
So this is me applauding you. Loudly. With a biscuit in each hand. 👏
Final Thought
ADHD isn’t new. It isn’t rare. And it definitely isn’t a punchline.
It’s a whole way of being in the world, creative, honest, intense, chaotic, curious, sensitive, brilliant. A brain that feels everything a little louder and loves things a little harder.
And it deserves more than jokes and TikToks.
It deserves real support. Real understanding. Real care.
Because behind every adult finally getting answers is a child who spent years believing they were the problem.
And they never were.
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Thank you, for the incredibly well written and heartfelt understanding of the plight of ADD on a very low looping day.
Thank you for a moment of feeling understood!
Now if only those I care & love most could sit, patiently, and read this with me with short, whom im kidding, interjections of my personal experiences to go along. Thank You & God Bless
P.S. Yes, I know I could share it with those i havent responded to in months, lol, or my wife who... Ha, guess ill do it tomorrow and leave the tab open as a reminder. 🤣
Inattentive type – distracted, forgetful, mentally elsewhere.
Check that one off the list, yep
and these
Forgetting the one thing you went into the shop for
• Reacting to certain fabrics like they’re personal enemies
• Hyper-focusing for hours on spreadsheets, sharks, trains, or vintage hoovers (Kirby anyone)
• Going completely blank when faced with a “simple” task
• Feeling paralyzed by “just do it” advice and then blaming yourself for struggling.
Being past fifty but not yet sixty I can confirm I was labelled 'useless' and as a bonus "be no good for nothing". I was labelled this by my dad and the education system, thanks, wankers.
It's great to read your words as I also have
things like:
• emotional chaos
• time blindness
• burnout
• sensory overload
• paralysis when overwhelmed
• forgetting why you walked into a room
• feeling “bad at life” for no reason
I have an MRI scan coming up. As well as this I also have Type 1 diabetes, diagnosed at 2.